International Rare Disease Day
February 29, 2020 is Leap Day. In a Leap Year. Leap Day is the Rarest Day of all as we only have Leap Day once every 4 years to correct the mathematical timing in the Calendar.
It is also International Rare Disease Day.
Life is hard enough when we are born with 10 fingers & 10 toes. Not all of us are that lucky.
As a Health Insurance Agent of more than 13 years now, I have never been more profoundly affected by HealthCARE issues of CRITICAL IMPORTANCE than the day my sweet little 4-year-old Grandson was born with a Critical Illness.
While he does have 10 fingers & 10 toes, he does have a Life-threatening Critical Illness that will be with him as long as he lives.
He has a PreExisting Condition FOR LIFE.
THIS is what drives me.
THIS is why I am more Politically Motivated than ever.
THIS is why I do what I do.
In 2019, the Intestinal Malrotation Foundation put out a call for families affected to raise awareness & thereby encourage Research for Treatments & a possible cure by requesting official recognition from our individual State Governors with a State Proclamation of January 15, 2020 to be recognized as Intestinal Malrotation and Volvulus Awareness Day.
To my great surprise, Texas Governor Gregg Abbott DID honor my request, in what I consider to be a Major Coup.
Some people reading this may be aware that the State of Texas, Governor Gregg Abbott & Texas Attorney General Ken Paxton are currently leading the way with a Federal Lawsuit in the Supreme Court.
I could not be more FURIOUS.
THIS is how you have a positive expression of anger.
THIS has angered me into action.
The two main provisions of ObamaCARE that are under attack are protections for PEOPLE with PreExisting Conditions & the Individual Mandate that people buy Health Insurance to be declared UnConstitutional.
I IMPLORE Governor Abbott to drop your DISGRACEFUL ATTACK on ObamaCARE.
Below is what I wrote to Thank him for his Official Gubernatorial Proclamation for recognition of Intestinal Malrotation and Volvulus Awareness Day.
He HIMSELF has a PreExisting Condition.
Please do the right thing Governor Abbott.
Intestinal Malrotation and Volvulus Awareness Day
Bi-Partisan cooperation between Democrats & Republicans make this country work for all of us.
When someone from the other Political Party wins an Election, that does not absolve them from governing & representing all Citizens in their jurisdiction.
Today I would like to thank Texas Governor Greg Abbott for honoring my request to join the Intestinal Malrotation Foundation & others across the country with loved ones facing life with a Rare Disease.
As a Life & Health Insurance Agent for more than 13 years now, providing Life-Saving Care is Personal & Professional for me.
My 4-year-old Grandson is a Volulus Survivor & will need PRESCRIPTION FOOD for the rest of his life unless we have some Medical Miracle Cure through scientific research.
I would like to thank Erin at the Intestinal